Lou Gehrig’s disease tagged posts

An old friend of mine has been stricken with ALS/Lou Gehrig’s disease, in some ways the most devastating medical diagnosis a human being can receive. There is little to no pain in ALS, so at least that takes it out of the realm of suffering common to rheumatoid arthritis, bone cancer and other diabolical conditions specializing in pain delivery to undeserving innocents.

But in its eventual robbery of nearly all human muscular activity save for blinking the eyes and perhaps an occasional partial smile or frown from a minutely functioning facial muscle or two, ALS has no parallel in its reduction of human physical function to levels not seen even in newborns and embryos.

Almost making it worse is that there is zero loss of cognition, so there is no escaping the full gravity of one’s plight.

And last week, we found out that playwright and sometime actor Sam Shepard died of the same wretched disease, a de...

I don’t believe I know one person in my everyday orbit who has even one shred of doubt that Brittany Maynard wasn’t fully entitled to the self-determination she employed on November 1 as she ended her own life under Oregon’s Death With Dignity law.

At a heartbreaking 29 years old, she was making a clear, rational, and yes, spiritually mature decision to end her life on her own terms, in her own time, before the ravages of the inoperable brain tumor she had endured overcame her ability to make any decisions or make any sense whatsoever.

Let me be clear: I regard human life as a precious gift that we must hold in the tenderest, most exalted esteem. What a kick it is, yes? Inexhaustibly enriching, full of beauty, intrigue, challenge, high humor, endless curiosity and capacity for love, wonder and joy.

Except when it isn’t.

And when confronting the end point of the disease that was soon going to kill M...